Progress of Applied Research on Patient-reported Outcomes in Adolescent Idiopathic Scoliosis
DOI:
https://doi.org/10.54691/gwbk1z24Keywords:
Adolescent idiopathic scoliosis (AIS), patient-reported outcomes (PROs), assessment tools, review.Abstract
This paper mainly reviews patient-reported outcome assessment tools for adolescent idiopathic scoliosis at home and abroad and their application status in the field of adolescent idiopathic scoliosis, aiming to provide references for further development of patient-reported outcome assessment tools for adolescent idiopathic scoliosis in China and selection of appropriate assessment tools for clinical staff.
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[1]D. Addai, J. Zarkos, A.J. Bowey: Current concepts in the diagnosis and management of adolescent idiopathic scoliosis, Childs Nerv Syst, vol. 36 (2020) no. 6, p. 1111-1119.
[2]D. Bizzoca, A. Piazzolla, G. Solarino, L. Moretti, B. Moretti: Subjective perception of spinal deformity after selective versus non-selective fusion of Lenke 1C curves, Spine Deform, vol. 10 (2022), p. 855-863.
[3]A.K. Al Mekkawi, J.P. Caruso, T.Y. El Ahmadieh, P. Palmisciano, M.W. Aljardali, A.G. Derian, M. Al Tamimi, C. A. Bagley, S.G. Aoun: Single Nucleotide Polymorphisms and Adolescent Idiopathic Scoliosis: a Systematic Review and Meta-analysis of the Literature, Spine(Phila Pa 1976), vol.48 (2023), p. 695-701.
[4]R. Dev, V. Raparelli, S. L. Bacon, K. L. Lavoie, L. Pilote, C. M. Norris: Impact of biological sex and gender-related factors on public engagement in protective health behaviours during the COVID-19 pandemic: Cross-sectional analyses from a global survey, BMJ Open, vol. 12 (2022), p. e059673.
[5]A.K. Al Mekkawi, J. P. Caruso, T. Y. Ahmadieh, P. Palmisciano, M. W. Aljardali, A. G. Derian, M. Al Tamimi, C. A. Bagley, S. G. Aoun: Single Nucleotide Polymorphisms and Adolescent Idiopathic Scoliosis: A Systematic Review and Meta-analysis of the Literature, Spine, vol. 48 (2023), p. 695-701.
[6]J. N. Gallant, C. D. Morgan, J. B. Stoklosa, S. R. Gannon, C. N. Shannon, C. M. Bonfield: Psychosocial Difficulties in Adolescent Idiopathic Scoliosis: Body Image, Eating Behaviors, and Mood Disorders, World Neurosurgery, vol. 116 (2018), p. 421-432. e1.
[7]L. Bickman, S.D. Kelley, C. Breda, A. R. de Andrade, M. Reimer: Effects of routine feedback to clinicians on mental health outcomes of youths: results of a randomized trial, Psychiatric Services,vol. 62 (2011) no. 12, p. 1423-1429. doi: 10.1176/appi.ps.002052011.
[8]J.H. Tao, M.Y. Yang, Y. Q. Liu, et al.Patient-reported outcomes in China based on CiteSpace: a visual analysis, Chinese General Practice Nursing, vol. 21 (2023)no. 27, p. 3751-3754. DOI:10.12104/j.issn.1674-4748.2023.27.002
[9]L. Wiener, E. Ballard, T. Brennan, et al. How I wish to be remembered: the use of an advance care planning document in adolescent and young adult populations. J Palliat Med, vol. 11 (2008) no. 10, p. 1309-1313.
[10]J.K. Clark, K. Fasciano: Young adult palliative care: challenges and opportunities, Am J Hosp Palliat Care, vol. 32 (2015) no. 1, p. 101-111.
[11]A. E. Sanders, L. M. Andras, S. E. Iantorno, A. Hamilton, P. D. Choi, D. L. Skaggs: Clinically Significant Psychological and Emotional Distress in 32% of Adolescent Idiopathic Scoliosis Patients, Spine Deform, vol. 6 (2018) no. 14, p. 435-440. doi: 10.1016/j.jspd.2017.12.014.
[12]W. K. Payne 3rd, J. W. Ogilvie, M. D. Resnick, R. L. Kane, E. E. Transfeldt, R. W. Blum: Does scoliosis have a psychological impact and does gender make a difference? Spine (Phila Pa 1976), vol. 22 (1997) no. 12, p. 1380-4. doi: 10.1097/00007632-199706150-00017.
[13]G. Motyer, B. Dooley, P. Kiely A. Fitzgerald: Parents’ information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review, Patient Education and Counseling, vol. 104 (2021) no. 6, p. 1347-1355. doi: 10.1016/j.pec.2020. 11.023.
[14]Z. Shi, L. Dou, SP. Li: Patient-reported Outcome: Recent Advances in Applications and Research at Home and Abroad, Chinese General Practice, vol. 26 (2023) no. 4, p. 401-408. DOI:10.12114/j.issn.1007-9572.2022.0805.
[15]R. Zhu, Q. M. Huang, F.L. Wu, et al. Application and research progress of short form of adult patient outcome measurement information system, Journal of Nurses Training, vol. 36 (2021)no. 4, p. 298-301+362. DOI:10.16821/j.cnki.hsjx.2021.25.003.
[16]K. Churruca, C. Pomare, L.A. Ellis, et al. Patient-reported outcome measures (PROMs): a review of generic and condition-specific measures and a discussion of trends and issues, Health Expect,vol. 24 (2021), p. 1015-1024.
[17]M. Q. Liu, D. D. Tian, Y. T. Liu, et al. Research progress on assessment tools of patient-reported outcomes for patients with liver cancer, Chinese Nursing Research, vol. 37 (2023) no. 15, p. 2740-2744. DOI:10.12102/j.issn.1009-6493.2023.15.012.
[18]J. E. Ware Jr, C. D. Sherbourne: The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection, Med Care, vol. 30 (1992)no. 6, p. 473-83.
[19]L. Li, H. M. Wang, Y. Shen: Chinese SF-36 Health Survey: translation, cultural adaptation, validation, and normalization. J Epidemiol Community Health, vol. 57 (2003) no. 4, p. 259-63. doi: 10.1136/jech.57.4.259.
[20]H. Wang, M. Deng, L. M. Shi, et al. The application of the Chinese version of the European quality of life five-dimension scale in China, Chinese Journal of Postgraduates of Medicine, vol. 46 (2023) no. 2, p. 97-101. DOI:10.3760/cma.j.cn115455-20220926-00832.
[21]M. Herdman, C. Gudex, A. Lloyd, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L), Qual Life Res, vol. 20 (2011)no. 10, p. 1727-1736. DOI: 10.1007/s11136-011-9903-x.
[22]N. Luo, L. H. Chew, K. Y. Fong, D. R. Koh, S. C. Ng, K. H. Yoon, S. Vasoo, S. C. Li, J. Thumboo: Do English and Chinese EQ-5D versions demonstrate measurement equivalence? An exploratory study, Health Qual Life Outcomes, vol. 17 (2003)no. 1, p. 7. doi: 10.1186/1477-7525-1-7.
[23]C. F. Lee, R. Ng, N. Luo, et al. The English and Chinese versions of the five-level EuroQoL Group’s five-dimension questionnaire (EQ5D) were valid and reliable and provided comparable scores in Asian breast cancer patients, Support Care Cancer, vol. 21 (2013) no. 1, p. 201-209. DOI: 10.1007/s00520-012-1512-x.
[24]P. W. H. Cheung, C. K. H. Wong, D. Samartzis, K. D. K. Luk, C. L. K. Lam, K. M. C. Cheung, J. P. Y. Cheung: Psychometric validation of the EuroQoL 5-Dimension 5-Level (EQ-5D-5L) in Chinese patients with adolescent idiopathic scoliosis, Scoliosis Spinal Disord, vol. 4 (2016) no. 11, p. 19. doi: 10.1186/s13013-016-0083-x.
[25]A.N. Tosteson, T. D. Tosteson, J. D. Lurie, et al. Comparative effectiveness evidence from the spine patient outcomes research trial: surgical versus nonoperative care for spinal stenosis, degenerative spondylolisthesis, and intervertebral disc herniation, Spine, vol. 36 (2011) no. 24, p. 2061-2068.
[26]J. Fairbank, J. Couper, J. Davies, et al. The Oswestry low back pain questionnaire, Physiotherapy, vol. 66 (1980) no. 8, p. 271-273.
[27]D. Baker, P. Pynsent, J. Fairbank: The Oswestry Disability Index revisited. Back Pain: New Approaches to Rehabilitation and Education, Manchester University Press, Manchester (1989), p. 174-186.
[28]G.X. Zheng, X.O. Zhao, G.L. Liu, et al. Reliability of the Modified Oswestry Disability Index for evaluating patients with low back pain, Chinese Journal of Spine and Spinal Cord, vol. 12 (2002)no. 1, p. 13-15. DOI:10.3969/j.issn.1004-406X.2002.01.004.
[29]J.W. Cheng, Z.L. Wang, W. Liu, et al.Improvement of Oswestry disability index and its test of reliability and validity, Chinese Journal of Spine and Spinal Cord, vol. 27 (2017) no. 3,p. 235-241. DOI:10.3969/j.issn.1004-406X.2017.03.07.
[30]T.R. Haher, J. M. Gorup, T. M. Shin, P. Homel, A.A. Merola,D.P. Grogan, et al. Results of the Scoliosis Research Society instrument for evaluation of surgical outcome in adolescent idiopathic scoliosis. A multicenter study of 244 patients, Spine (Phila Pa 1976), vol. 24 (1999), p. 1435-1440.
[31]M. Asher, L. S. Min, D. Burton, B. Manna: The reliability and concurrent validity of the scoliosis research society-22 patient questionnaire for idiopathic scoliosis, Spine (Phila Pa 1976), vol. 28 (2003) no. 1, p. 63-9. doi: 10.1097/00007632-200301010-00015.
[32]K. M. Cheung, A. Senkoylu, A. Alanay, Y. Genc, S. Lau, K. D. Luk: Reliability and concurrent validity of the adapted Chinese version of Scoliosis Research Society- 22 (SRS-22) questionnaire, Spine (Phila Pa 1976), vol. 32 (2007) no. 10, p. 1141-5. doi: 10.1097/01.brs.0000261562.48888.e3.
[33]M. Li, C.F. Wang, S. S. He, et al. Reliability and Validity of adapted simplified Chinese version of the Scoliosis Research Society-22 patient questionnaire, Chinese Journal of Spine and Spinal Cord, vol. 18 (2008) no. 3, p. 212-217.
[34]A. Caronni, F. Zaina, S. Negrini: Improving the measurement of health-related quality of life in adolescents with idiopathic scoliosis: the SRS-7, a Rasch-developed short form of the SRS-22 questionnaire, Res Dev Disabil, vol. 35 (2014), p. 784-799. doi:10.1016/j.ridd.2014.01.020
[35]A. Jain, P. D. Sponseller, S. Negrini, P.O. Newton, P.J. Cahill,T.P. Bastrom, et al. SRS-7: a valid, responsive, linear, and unidimensional functional outcome measure for operatively treated patients with AIS, Spine (Phila Pa 1976),vol. 40 (2015),p. 650-655. doi:10.1097/brs.0000000000000836
[36]J. M. Climent, A. Reig, J. Sánchez, C. Roda: Construction and validation of a specific quality of life instrument for adolescents with spine deformities, Spine (Phila Pa 1976), vol. 20 (1995) no. 18, p. 2006-11. doi: 10.1097/00007632-199509150-00011. PMID: 8578377.
[37]M. Hu, Z. Cai, Y. Yang, X. Hong, Z. Zhang, C. Wang, X. Zhou, Y Meng, J. Zhao: Reliability and Validity of the Adapted Chinese Version of the Quality of Life Profile for Spine Deformities in Adolescents With Idiopathic Scoliosis, Global Spine J, vol. 14 (2024) no. 4, p. 1269-1276. DOI: 10.1177/21925682221139462.
[38]J .O. Sanders, D. Polly, W. Cats-Baril, et al. Analysis of patient and parent assessment of deformity in idiopathic scoliosis using the Walter Reed Visual Assessment Scale, Spine, vol. 28 (2003), p. 2158-63.
[39]J. O. Sanders, J. J. Harrast, T. R. Kuklo, D. W. Polly, K. H. Bridwell, M. Diab, J. P. Dormans, D. S. Drummond, J. B. Emans, C. E. Johnston 2nd, L. G. Lenke, R. E. Mc Carthy, P. O. Newton. B. S. Richards, D. J. Sucato, Spinal Deformity Study Group: The Spinal Appearance Questionnaire: results of reliability, validity, and responsiveness testing in patients with idiopathic scoliosis, Spine (Phila Pa 1976), vol. 32 (2007) no. 24, p. 2719-22. doi: 10.1097/BRS.0b013e31815a5959.
[40]X. Wei, X. Zhu, Y. Bai, D. Wu, J. Chen, C. Wang, Z. Chen, C. Yang, J. Li, M. Li: Development of the Simplified Chinese Version of the Spinal Appearance Questionnaire. Cross-cultural adaptation and psychometric properties evaluation, Spine(Phila Pa 1976), vol. 37 (2012) no. 17, p. 1497-504. doi: 10.1097/BRS.0b013e3182407e25.
[41]M.J. Mulcahey, R. S. Chafetz, A. M. Santangelo, et al. Cognitive testing of the spinal appearance questionnaire with typically developing youth and youth with idiopathicscoliosis, J Pediatr Orthop, vol. 31 (2011) no. 6, p. 661-667.
[42]H. R. Weiss: Reproducibility and criterion validity of the BSSQ-stress questionnaire for patients with scoliosis. Proceedings of the 3rd International Conference on Conservative Management of Spinal Deformities Poznan, vol. 04 (2006),p. 7-8
[43]X. Xu, F. Wang, M. Yang, Q. Huang, Y. Chang, X. Wei, et al. Chinese adaptation of the Bad Sobernheim stress questionnaire for patients with adolescent idiopathic scoliosis under brace treatment]. Medicine (Baltimore), vol. 94 (2015), p. e1236. doi: 10.1097/MD.0000000000001236.
[44]E. Vasiliadis, T. B. Grivas, K. Gkoltsiou: Development and preliminary validation of the brace questionnaire (BrQ): a new instrument for measuring the quality of life of brace treated scoliotics, Scoliosis, vol. 1 (2006), p. 7. doi: 10.1186/1748-7161-1-7.
[45]H. Yi, H. Chen, X. Wang, H. Xia: Cross-Cultural Adaptation and Validation of the Chinese Version of the Brace Questionnaire, Front Pediatr, vol. 9 (2022), p. 763811. doi: 10.3389/fped.2021.763811.
[46]E. Kinel, T. Kotwicki, A. Podolska, et al. Polish validation of Brace Questionnaire. Eur Spine J, vol. 21 (2012) no. 8, p. 1603-1608.
[47]J. Bago, J. Sanchez-Raya, F. J. Perez-Grueso, J. M. Climent: The Trunk Appearance Perception Scale (TAPS): a new tool to evaluate the subjective impression of trunk deformity in patients with idiopathic scoliosis, Scoliosis, vol. 5 (2010). doi: 10.1186/1748-7161-5-6.
[48]J. Bago, A. Matamalas, J. Sánchez-Raya, F. Pellise, F. J. S. Pérez-Grueso: Responsiveness of Image Perception Outcome Scales after Surgical Treatment of Idiopathic Scoliosis: A Comparison between the Trunk Appearance Perception Scale (TAPS) and Scoliosis Research Society-22 (SRS-22) Questionnaire, Spine Deform, vol. 6 (2018) no. 4, p. 417-423. doi: 10.1016/j.jspd.2017.12.010.
[49]J. D. Auerbach, B. S. Lonner, C. E. Crerand, S. A. Shah, J. M. Flynn, T. Bastrom, P. Penn, J. Ahn, C. Toombs, N. Bharucha, W. P. Bowe, P. O. Newton: Body image in patients with adolescent idiopathic scoliosis: validation of the Body Image Disturbance Questionnaire--Scoliosis Version, J Bone Joint Surg Am, vol. 96 (2014)no. 8, p. e61. doi: 10.2106/JBJS.L.00867.
[50]H. Bao, P. Yan, B. Lonner, Y. Qiu, Y. Ren, Z. Zhu, Z. Liu, F. Zhu: Validation of the Simplified Chinese Version of the Body Image Disturbance Questionnaire-Scoliosis, Spine (Phila Pa 1976), vol. 40 (2015)no. 21, p. E1155-60. doi: 10.1097/BRS.0000000000001140.
[51]A. Caronni, L. Sciumè, S. Donzelli, F. Zaina, S. Negrini: ISYQOL: a Rasch-consistent questionnaire for measuring health-related quality of life in adolescents with spinal deformities, Spine J,vol. 17 (2017) no. 9, p. 1364-1372. doi: 10.1016/j.spinee.2017.05.022.
[52]S. Liu, J. Liang, N. Xu, S. Mai, Q. Wang, L. Zeng, C. Du, Y. Du,Y. Zeng, M. Yu, Z. Liu: Reliability and validity of simplified Chinese version of the Italian spine youth quality of life questionnaire in adolescents with idiopathic scoliosis, BMC Musculoskelet Disord, vol. 22 (2021) no. 1, p. 568. doi: 10.1186/s12891-021- 04462-8.
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