Autistic and Accompanied: On Autistic Communities and its Literature
DOI:
https://doi.org/10.54691/bcpssh.v21i.3703Keywords:
Autism; autism community; stigmatization; caregiver.Abstract
It is now widely recognized that the literature on the autism community, like the number of individuals diagnosed with autism spectrum disorders, has exploded in the last decade. In sociological research focusing on the autism spectrum community, even though landing on the same topic as they might be, the research questions of different authors are often diverse, fragmented, and disparate, and the relatively heterogeneous nature of both the research methods and the disciplinary contexts in which the research is rooted adds to the complexity of the situation faced by researchers wishing to provide an overview of the field. This paper attempts to provide a brief overview of the current state of research on the autism community by topic. The reviewed articles on autism communities are selected by keyword search and related literature search, and then organized and summarized in terms of research contents, research methods and reference values. The existing research on autism communities are arranged in terms of their coverage and database characteristics, in hope that doing so would point out possible future directions for researchers.
Downloads
References
Kapp, S.K., et al., Deficit, Difference, or Both? Autism and Neurodiversity. Dev Psychol, 2013. 49(1): p. 59-71.
Ni, C.D. and M. Su, The Needs of Autistic Families and Social Work Intervention: A Report from 120 Autistic Families in Shenzhen. Journal of Guangdong University of Technology (Social Science Edition), 2012. 12: p. 36-41
Gao, F. and J. Yang, A Study of Social Support for Families of Children with Autism: A Survey of 99 Families of Children with Autism in Hebei Province. Journal of Pedagogy, 2008: p. 24-26.
Jing, J., Current Status and Outlook of Autism Spectrum Disorder Treatment. Journal of Sun Yat-Sen University (Medical Sciences), 2015. 36(4): p. 481-488.
Zhou, Y., Study on Social Discrimination and Perceived Stigma and Its Influencing Factors of Patients with Mental Disorders. 2012.
American Psychiatric Association, Diagnostic and Statistical Manual of Mental Disorders, DSM-V. 5 ed. 2013: American Psychiatric Publishing.
Bagatell, N., From Cure to Community: Transforming Notions of Autism. Ethos, 2010. 38: p. 33-55.
Barker, K. and T.R. Galardi, Diagnostic Domain Defense: Autism Spectrum Disorder and the DSM-5. Social Problems, 2015. 62(1): p. 120-140.
Cascio, M.A., Neurodiversity: Autism Pride among Mothers of Children with Autism Spectrum Disorders. Intellect Dev Disabil, 2012. 50(3): p. 273-283.
Rodogno, R., K. Krause-Jensen, and R.E. Ashcroft, ‘Autism and the Good Life’: a New Approach to the Study of Well-being. J Med Ethics, 2016. 42(6): p. 401-408.
Vogan, V., et al., Factors Associated with Caregiver Burden among Parents of Individuals with ASD: Differences across Intellectual Functioning. Family Relations, 2014. 63: p. 554-567.
Rosqvist, H.B., Normal for an Asperger: Notions of the Meanings of Diagnoses among Adults with Asperger Syndrome. Intellect Dev Disabil, 2012. 50(2): p. 120-128.
Tan, C.D., “I’m a normal autistic person, not an abnormal neurotypical”: Autism Spectrum Disorder Diagnosis as Biographical Illumination. Soc Sci Med, 2018. 197: p. 161-167.
Davidson, J. and V.L. Henderson, ‘Coming out’ on the Spectrum: Autism, Identity and Disclosure. Social & Cultural Geography, 2010. 11(2): p. 155-170.
Hacking, I., How We Have Been Learning to Talk about Autism: A Role for Stories. The Author, 2009. 40: p. 499-516.
Goffman, E., Stigma: Notes on the Management of Spoiled Identity. 1 ed. 1963: The Penguin Group.
Liu, K.Y., M. King, and P.S. Bearman, Social Influence and the Autism Epidemic. American Journal of Sociology, 2010. 115: p. 1387-1434.
Link, B.G., et al., The Social Rejection of Former Mental Patients: Understanding Why Labels Matter. American Journal of Sociology, 1987. 92: p. 1461-1500.
Link, B.G., et al., Public Conceptions of Mental Illness: Labels, Causes, Dangerousness, and Social Distance. Public Conceptions of Mental Illness, 1999. 89: p. 1328-1333.
Corrigan, P.W. and A.C. Watson, Understanding the Impact of Stigma on People with Mental Illness. World Psychiatry 1:1, 2002: p. 16-19.






